Some Good News!

Hi everyone,

Kidney news.
Today there was a multidisciplinary team meeting about Ffion with nephrologists, radiologists and urologists. They all seem to be agreed that the nephrostomy hasn't worked so they are keen to remove it as it is just a potential source of infection. They want to do that with some care so today after we left they were going to do a blood test as a baseline and then clamp the tube so it doesn't function anymore. They're going to monitor her kidney function with blood tests until Thursday when they will do another dye scan to see what's happening without the nephrostomy tube functioning. If all is stable, they will remove her nephrostomy. Then they will plan when they're going to do her obstruction removal op.

Feeding news.
Ffion is now on 3-hourly feeds. She has about 1/4 of this by bottle and the rest delivered by pump down her feeding tube. She has had some calorie powder (duo-cal) added to her feed and today has gained weight for the first time :-))

The really good news is that today we began to have lessons on feeding through her tube. This means that hopefully, once her nephrostomy has been removed, we may be able to take her home. YAY!!! It will be a bit restrictive as we will be tied to home for feeding, but I don't care! Just to bring my little girl home will be so good. We think it might be early next week but will keep you all posted.

Today has been a good day :-))

Sally