Today was a good day from a feeding point of view - Ffion had her whole 10am feed by bottle and looked like she wanted more! Unfortunately for her she had to wait until 1pm. She was kept well occupied though by a lovely walk outside in the pram and a cuddle from Uncle Merv & Auntie Kim (our pastor and his wife) who came to visit. We managed to get her to have all of her 1pm feed by bottle but it really tired her out and there was no chance at 4pm, but she's made fantastic progress with that today.
I had a lesson today in feeding using a nasal tube and pump at home and got all the kit delivered to the ward. It's all fully portable, which I wasn't expecting, so that means we can set it up and take it out with us so we won't be tied to the house all the time. My next lesson before we go home will be in placing the tube through her nose and into her tummy. This is pretty daunting on your own child and I'm not under any pressure to be able to do it, but it'll save us a trip to the hospital at 3am if she decides to pull it out!
Tomorrow is her big operation so we had the visits from the anaesthetist and blood tests prior to all of that. We're just hoping and praying everything goes ok tomorrow but she's in the safest hands possible! We'll update the blog when there is news tomorrow.
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