As you can tell, we're really happy today!!
The staff at the hospital have been talking about Ffion coming home for days but nobody has committed themselves to a day or time other than 'probably some point this week'. We thought we had a setback as well when she developed a urinary tract infection over the weekend but the antibiotics have been kicking in and the consultant says she's ready to go.
More good news is that we don't need to go home with an electric pump to feed her with - she's having a lot of feed by bottle and the remainder we will put down her tube using a gravity feeding set which is a lot quicker and easier.
For those of you into numbers, her creatinine is hovering around the 130 mark (normal for a newborn is 30-50) and the consultant says if it drops to less than 100 she will probably feed normally. However, this is unlikely as it is normal for somebody's creatinine level to rise as they grow. Consequently we are now looking at regular monitoring at the Children's Kidney Centre (probably weekly to begin with) and we still can't rule out her kidney function being insufficient for the remainder of her life, but we know she's in really good hands :-)
Unless there's any great change tomorrow we shall blog again on Wednesday to let you know she's home ok!
Sally x
No comments:
Post a Comment